Birth Date - September 22, 2007
Main Diagnosis - Cerebral Palsy, hydrocephalus, VP shunt, legally blind
THEME: Princesses, esp. Disney Princesses and the color purple
Quilt Deadline: 2/1/2014
Biography
Kylee is 5 years old and in the first grade. She was born at 27 weeks gestation and has had to overcome many trials in such a short time. Kylee only weighed 2 pounds and 1 ounce. At 2 days old she had her first surgery to repair a heart murmur. She also had grade 3 brain bleeds and was diagnosed with hydrocephalus. Kylee has had 6 shunt surgeries. The first 4 was from birth to 10 mons. old., and 2 in 2012. While in the hospital she acquired several infections in her shunt. She got spinal meningitis, a staff infection and a rare yeast infection in her shunt. Kylee was also placed on feeding tube and it is still in place but no tube feedings for the last 5 mons. and she is doing great. If she is able to maintain her weight it will be able to be removed.
Kylee was also diagnosed with Spastic Dysplagia Cerebral Palsy at the age of 2. It effects her legs more so than her arms. She is able to walk and run with the aide of a walker!!! She also wears AFO's on her feet.
Kylee is also legally blind but able to see well enough to do all the things she loves to do. Kylee is an amazing little girl and has brought such joy to our lives. Kylee's Dr. has nick named her Hope, because she is the perfect example of a Ray of Hope.
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Kylee N.
California
