Silas B.
Maine
Birth Date - May 27, 2011
Main Diagnosis - Spastic Quadriplegia Cerebral Palsy
THEME: NAUTICAL - UNDER THE SEA (to include, Anchors, Sea Life, whales, etc...)
Quilt Deadline: 9/1/2014
Silas's Story
I went into labor at 42 weeks with my son Silas. Everything was going smooth
up until about three hours before I gave birth. Silas and I both had fevers
and what we didn't know at the time what that he was loosing oxygen. I
finally gave birth after pushing for 3 and a half hours and we knew
something was terribly wrong right away when Silas came out silent as can be
and struggling to breathe. Silas was rushed to the nursery and I was left in
fear with my husband, we were both terrified. Three hours later I finally
got to see my son before they whisked him away to another hospital that had
a NICU an hour and a half away. I wasn't transferred until the next day to
the hospital Silas was at and I was told that on his ambulance ride over to
the hospital he suffered from a seizure. This was the first of many seizures
to come. When I saw my son for the second time ever, he stopped breathing.
He was having intense moments of apnea and struggling to breathe. He was
heavily sedated with seizure drugs and still remained silent. After spending
16 days in the NICU, test after test, it was determined that Silas was going
to have a rough road ahead. He was diagnosed with an outcome of 50% chance
that he would have some form of Cerebral Palsy, which we knew nothing about
at the time, we just knew it was scary. We were in fear.
We finally brought Silas home, still suffering from seizures with the most
high pitched neonatal cry, not normal like a healthy babies would be. We
were scared and full of anxiety at what our future held for us and our
newborn. Early intervention soon came in and he was evaluated and started
weekly therapies. He was severally developmentally delayed. We saw
specialists, doctors, case managers, early intervention teams, and that
became our new normal. Silas stopped eating at six months of age and had a G
tube placed. He lost his ability to suck, but during this time gained his
eyesight. We soon moved to another city to be closer to hospitals and
specialists, neurologists and special needs support groups. He had been
getting PT, OT and Speech Therapy weekly, Neurologists were telling us he
would never walk, talk, sit up on his own, crawl, etc, etc. We were
determined to fight for our goals and developmental milestones for him and
we sought out a different form of therapy. This therapy is called the
Masgutova Method.
The Masgutova Method has forever changed our lives. It has given us hope for
Silas' future. It has given Silas better range of motion in his body, the
ability to see that he has two very useful hands with fingers that he once
thought were fists at the end of his arms. It was given him the chance to
say "Mama" to me for the first time at 2 years old. It was given him
strength! It has given us so much positive change in our lives. Today we are
fully dedicated to helping Silas develop and grow, reach milestones we never
thought possible and to find his voice. We still face all of the ups and
downs of his diagnosis, surgeries, complications and hurdles to jump over.
Just this week he will be going in to have his 12th surgery. No child this
young should have to face that! But this is our normal and we will get
through it. At the end of each day we are determined the make the next a
better day and full of hope for new milestones, new possibilities, and for
Silas to know how much he is loved! And we thank each and every individual
that rallies for Team Silas and supports us along the way!
CLICK HERE SEE WHAT HAS BEEN STITCHED
"Thank You"
We received our quilt today and are blown away by the amount of hard work and love that went into making this! Thank you so much for doing this for our son it was the perfect gift to give to him today when he's not feeling well! Here are some pictures of him with his quilt feel free to share them with everyone! Thank you all so much! Love Matt Melly and Silas
